Dedicated to all sufferers of this nasty sometimes invisible illness.
Catching Elephant is a theme by Andy Taylor
It’s Invisible Illness Awareness Week.
Ginger, with multiple invisible illnesses, present & accounted for.
Don’t be fooled by the way we hold ourselves. We’re using everything we have just by smiling.
(Source: sick-girl-problems)
But basically its like your whole body is on Earth, except your intestines, which are in Hell.
John Green on Ulcerative Colitis (via enthusi-spastic)
Truth.
Grow With Me: Sorry to be such a downer, but,
I’m getting more sick every day. I can feel myself deteriorating. I cried on the floor for so long earlier because I had to have help standing again. It’s more and more lately I can’t do things on my own. I just want to be independent and pain free again. Sooner or later I’ll…
(Source: maelavender)
To all those with SLE what do you take for pain?
I don’t have organ involvement, but I do have raynaud’s so anything that could mess with circulation is out of the question… I just need to find something that works but can be taken for long periods of time without causing dependency, ya know?
Flare up
If you’re going put me through this much pain why not kill me?
Any one ever find anything for pain relief?
Dear Debt Collectors,
PLEASE LEAVE ME THE FUCK ALONE!
If I could have afforded the bill I would have payed it in the first place!
Diary of A Sick Kid: Systemic Lupus Erythematosus
Signs and Symptoms of SLE (Lupus)
Musculo-Skeletal:
__ Joint Pain
Neurological:
__ Headaches
__ Brain Fog
__ Numbness
__ Tingling
__ Seizures and other seizure disorders
__Vision problems
__ Personality changes
Cardiovascular:
__Abnormal heart rhythms
Please realize that even though you may have most or some of these symptoms that it is incredibly hard to diagnose lupus. There are lots of other diseases and health problems that can be confused with lupus so always get more than one opinion.
And I made a tote!
I’m just saying…
And I think people can relate. When you have so many different symptoms and you don’t know which ones to tell which doctor. I sit there and complain my rheumatologist that I have spasms in my head and she looks at me like I’ve lost my mind and says hmmm Maybe it’s anxiety. OR MAYBE IT’S NOT! I have SLE but it closer myelitis seems closer to Multiple Sclerosis than Lupus and when my rheumatologist doesn’t know she goes with the anxiety theory. IT’S NOT IN MY HEAD!!! I SWEAR THE NEUROLOGIST SHOWED ME THE CHART OF THE LEVELS OF MY MESSED UP SPINE AND IT CAUSES ODD SPASMS IN MY HEAD. Though I didn’t have the sharp pains in my head. Ugh I’m just one big mess. Central Nervous System… why can’t we be friend instead of enemies? I don’t want to punish you with cytoxan and I don’t want fall down or have my arms legs burn. Please be good to me… (and that’s when I think I’ve lost my sanity… when I start begging my body to be my friend)
Lupus Awarness Month.
Expect some more Lupus themed posts.
How did I manage to be that 1 in 600?
