Dedicated to all sufferers of this nasty sometimes invisible illness.
John Green on Ulcerative Colitis (via enthusi-spastic)
I don’t have organ involvement, but I do have raynaud’s so anything that could mess with circulation is out of the question… I just need to find something that works but can be taken for long periods of time without causing dependency, ya know?
If you’re going put me through this much pain why not kill me?
Any one ever find anything for pain relief?
PLEASE LEAVE ME THE FUCK ALONE!
If I could have afforded the bill I would have payed it in the first place!
And I think people can relate. When you have so many different symptoms and you don’t know which ones to tell which doctor. I sit there and complain my rheumatologist that I have spasms in my head and she looks at me like I’ve lost my mind and says hmmm Maybe it’s anxiety. OR MAYBE IT’S NOT! I have SLE but it closer myelitis seems closer to Multiple Sclerosis than Lupus and when my rheumatologist doesn’t know she goes with the anxiety theory. IT’S NOT IN MY HEAD!!! I SWEAR THE NEUROLOGIST SHOWED ME THE CHART OF THE LEVELS OF MY MESSED UP SPINE AND IT CAUSES ODD SPASMS IN MY HEAD. Though I didn’t have the sharp pains in my head. Ugh I’m just one big mess. Central Nervous System… why can’t we be friend instead of enemies? I don’t want to punish you with cytoxan and I don’t want fall down or have my arms legs burn. Please be good to me… (and that’s when I think I’ve lost my sanity… when I start begging my body to be my friend)